Therapy vignettes: was he on to something?

Close-up photograph of household vertical blinds. The lighting emphasises the textures within the blinds, creating an image that seems almost abstract.
Image credit: Ben Hosking

[Trigger warning: death/bereavement.]


October 2006 (12.5 years before autism identification).

It’s a Saturday morning. I’m at the last of a series of counselling appointments provided by work.

The ostensible reason is bereavement; my two remaining grandparents recently died within one week of each other. But actually, we dealt with that in the first week. My maternal grandfather and paternal grandmother had lived long and fruitful lives. Their final months had been full of pain and paralysis, preventing them from living as the people they had been their entire lifetimes. They had been suffering, and they were suffering no longer.

(I’m not incapable of profound grief. I was ten years old when my best friend, a two-year-old black cat named Catkins, was killed by a car. The weeks of disbelief, crying and loneliness that followed were some of the most painful I have ever experienced. And in years to come, I will be devastated by the untimely death of a friend my own age. This will also affect me far more deeply.)

We’ve moved onto something else. Something I alluded to briefly in early sessions, that my counsellor is keen to explore.

***

The counsellor has been sitting opposite me. Although I struggle with eyes, I can’t escape the compulsion to stare at his.

He has some kind of tic (or other neurological quirk?) that makes him flicker his eyes from side to side. I know he can’t help it, but I also can’t help but be intrigued as to its cause, and mechanisms allowing it to happen.

I try to avert my gaze.

***

We’re approaching the session wrap-up. I feel a sense of release, but also depletion. I have expended much today.

“So, as you know, this is your last session with me. But I think we need to look at where to go next. This idea of ‘social impediment’ you’ve been referring to – this seems to be really significant. I feel it’s something that it would be useful to explore in more depth.”

“Okay.”

“So I’m going to give you some details of other providers. You can continue coming to see me. You’d have to pay for future sessions, of course. Then there’s [Service X] – you might find their approach useful. There are a few other options – I’ve written them down for you.”

“Thanks. The thing is…would I have to pay for all of these?”

“Unfortunately yes. Of course you can talk to your GP, but I know the NHS waiting list is really long. You’ll be waiting a long time. And I think you really need some continuity. I don’t want you to have to wait too long – what you’ve been talking about seems really pressing. It would be really useful for you to be able to delve into it properly. We’ve not been able to do this in six sessions.”

“But I really can’t afford it. I don’t earn that much. My husband and I don’t have a lot of spare income.”

“I’m wondering whether you need to think about how much of a priority this is. Your feelings that you are ‘socially impeded’, as you describe it – they seem to be really affecting you. I think you’d benefit from being able to explore it, and get to grips with what it means for you.”

A pause.

“There might be some subsidy available – have a look at [Organisation Y]. There are some criteria, but you might be eligible for some help.”

I look at the piece of paper, and come to the conclusion I probably wouldn’t qualify.

I take a deep breath.

“I’m really sorry. I know this is important. But the thought of having to pay for more sessions stresses me out. I don’t think I can.”

“That’s a real shame. I really feel more sessions might help. But it’s your decision. Anyway, I hope you’ve found this useful for you, and I hope I’ve been able to help you in some ways. Good luck with everything.”

***

Years later, I wonder. Was autism the thing he was getting at? And what would have been my response at that time? At that age?

I’ll never know.


[Image description: Close-up photograph of household vertical blinds. The lighting emphasises the textures within the blinds, creating an image that seems almost abstract.]

Work Vignettes: the verbal warning (Awkward Coffee #1)

An off-white, disposable coffee cup with a plastic lid, placed on an off-white surface, against a blank white background.

Image credit: John Beans (https://myfriendscoffee.com/)

September 2002 (14 years before autism identification).

It’s Monday morning. The start of a new term. Last week was College Enrolment Week.

***

(Just a few days ago, I had been clad in a cheap, over-sized, garishly yellow “Here to Help” staff polo shirt. Small, black insects had clung in loose but numerous clusters to the stingingly bright, sweat-soaked synthetic fabric.

For one extended workday, I’d been assaulted by noise, questions, crowds, confusion, chaos, jostling and overwhelm. Body odour, food smells, raised voices, untidy piles of papers, leaky pens, thirst. No hiding places.

Afterwards, I had trudged, head pounding, sweaty-polo-shirt sticky and migraine sick, back to my friends’ flat. I’m staying with them short-term while I find somewhere else to live, after a recent, sudden relationship breakup.

After a brief slump in their sofa, some food, and brief interactions with my friends and their two-year-old daughter, I’d lain myself down on the mattress in their spare room and cried until I was too exhausted to stay awake.)

***

My line manager has invited me to the college canteen for a coffee.

“I need to talk to you about last week.”

“Okay…”

“I know it was a very busy time, but I have to let you know that some of your behaviour was unacceptable. It’s one thing to get flustered, but I absolutely cannot abide swearing.”

“I’m really sorry. You know I’ve just recently come off the medication the doctor gave me. It takes time to get out of my system – they didn’t stop the prescription soon enough. It’s making it difficult to control myself.”

“I really think that’s no excuse. This is a college. It is not acceptable to speak like that in front of students.”

“I know that. I’m so, so sorry. I’m just having a really difficult time. The breakup was awful. You were away when it all happened. It’s so hard. It’s going to take me a long time to get over it. I’m really stressed at the moment.”

“I know you’re having a difficult time. We all have struggles. But it’s important to keep your personal life separate from work. You mustn’t let these things come out in front of people.”

Clattering from the kitchen.

Chatter from nearby tables.

Searingly bright sunshine streaming through the window behind my manager, silhouetting her face and making me squint at her through barely-open, scrunched-up eyelids.

I can still see the spidery clumps of dark blue mascara that coat her eyelashes, but perhaps it’s my mind’s eye filling in the blanks.

I can feel my face getting hotter. I imagine it getting redder. My eyes…

“Let this be a warning on this occasion. But I cannot have this sort of thing happen again.”

“Okay. I’m really, really sorry.” The tears have started. I bow my head towards the table, so that neither of us sees the other’s face.

I realise it’s going to be time to get back to the office soon. There’ll be students to see.


[Image description: An off-white, disposable coffee cup with a plastic lid, placed on an off-white surface, against a blank white background.]

#TakeTheMaskOff: authentic vulnerability

Cartoon drawing of Mama Pineapple, a white female-presenting person with chin-length red hair. She is clenching her left fist in order to make her bicep bulge. Tears are streaming down her face.

One of the things I’ve always hated about myself is how easily I burst into tears, and how often I cry.

That’s not to say I’m ashamed of it. It’s my natural reaction to surprise, bad news, overwhelm, discomfort, confusion, and a whole range of other scenarios, situations and feelings. It’s just how I am.

The reason I hate it is not that it shames me, but because it draws others’ attention to me at times when I’m feeling especially vulnerable. And my very dramatic outward displays of emotion make me vulnerable. I am left exposed, demarcated, spotlighted, in a way in which others are not.

I’ve been crying a lot over recent months. I’m cagey about talking too much about the reasons for this on this blog, because while I’m often very candid and open on here, many of those who read my words know me in person, including some people I work with.

Currently I’m contending with huge amounts of change. I’ve lurched from one period of uncertainty to another. This particular dark cloud, while it has evolved and morphed in shape and outline, has been hanging over me for well over eighteen months. Its form has been given greater definition in the past couple of months, but still that form has yet to settle into a state of finality.

I’ve had bad news delivered to me, and many people around me, in very exposing, “public” settings.

I’ve had reassuring structure and routine ripped out from under my feet. I see gaping nothingness in front of me, however much others around me try to reassure me that the unknowns will come to an end at some point.

I’m experiencing a form of bereavement – not over a lost loved one, but over the loss of a particular combination of relationships, things, environments, and a way of being that I’ve loved, and that has made me feel supported, contented and happy for a good few years, even while I’ve contended with many difficulties elsewhere in my life.

Throughout it all, I’ve been told to remain professional, and to “try to use my coping mechanisms” to manage my distress.

But I’ve been unable to prevent myself from crying.

I’ve been unable to prevent myself having meltdowns. At work. At home. In public places.

It’s all too much.

My sense of vulnerability raises my already-pretty-extreme levels of anxiety.

How do others perceive me?

Can I truly be regarded as competent? Professional? Capable? Able? Trustworthy?

***

The truth is, I can be all these things, and vulnerable. Such qualities are not mutually exclusive.

Since my diagnosis, I’ve always been open about my autism.

My reasoning is that I struggle to be quiet about aspects of truth about myself; and that I simply wouldn’t want to be around anyone who looked negatively upon me as a result of knowing that I’m autistic. It’s a part of me, and by rejecting my autism, anyone who does so rejects me.

But my emotional vulnerability is as much a part of my autism as my sensory sensitivities, my pattern-spotting abilities, my attention to detail, and the deep joy I experience when working on things that interest me.

I am not ashamed of that vulnerability, but I now feel I need to go further than such a state of neutrality; of not-negativity.

I have started to embrace it as a fundamental personal truth.

Sometimes, it means – as someone I know recently put it – that I’m “taking one for the team” in more readily displaying those feelings that others around me feel internally, but are unwilling or unable to convey to the outside world. I’m raising awareness.

My vulnerability is authentic.

My vulnerability is real.

My vulnerability is human.

And – perhaps perversely – my ability to allow myself to be vulnerable makes me strong.

Crying is cathartic. The pressure is released. This can sometimes take hours, but it does go. And when my tears have all been shed, and my wailing and sobbing has quietened, I’m exhausted, spent; but the tension is gone.

I know I’m alive, I’m here, and I can carry on.

Right now, I can’t keep up appearances. I can’t pretend I’m fine. I can’t currently wear the mask of acceptable social interaction very much of the time. I’m having to cope with too much.

And while crying can be useful, and I’ve done the Very Helpful Thing of making others aware of how serious things are, no-one should be repeatedly subjected to So Much Stuff that they dissolve in a puddle of tears on an almost daily basis. It’s tiring. It’s not a modus operandi I’m keen on.

Hence time off work, and limited time online. I’m trying to keep my life as quiet as possible at the moment. I need to rest, recover, and recuperate.

But I’m still here.

I’m authentic, I’m vulnerable, and I’m human.

#AutismAcceptance/#AutismAppreciation doodles ‘n’ scribbles, no. 30: April is nearly over, and I need to take a break (for a short while, at least).

Part of a lilac-painted living room with deep purple floor and white skirting boards. Mama Pineapple, a white femme-presenting person with red hair, wearing purple socks, blue leggings and a red, floral patterned tunic top, reclines on a brown leather sofa, one hand held over her forehead partially obscuring her face in a gesture of weariness. There are patterned cushions around her. Her other hand dangles down towards a white mug full of steaming coffee on the floor just in front of the sofa.A thought bubble above her reads “THANK F**K THAT’S OVER!”.

[Trigger warning: mention of suicide, murder, child abuse, sexism, cissexism, heterosexism, racism, gaslighting, social media abuse, “cure” therapies, ABA, ableism, neglect, mental illness.]


We’ve reached the end of April. The end of Autism “Awareness” Month. The end of Autism Acceptance Month.

And it’s been a hard one. I’ve kept my interaction with social media somewhat limited, but have still managed to encounter much that has upset me.

The thing is, “awareness” doesn’t stop after April.

All year round, every single day:

  • Somebody, somewhere, is working on a “cure” for something that isn’t even a disease or a problem.
  • An autistic adult is being told that their views are not valid because they’re “not autistic enough”, or “not like my child”.
  • Elsewhere, a non-verbal autistic person’s needs and views are being ignored because those around them presume them incapable of intelligent thought.
  • An autistic child is getting the feeling that they’re “broken” and not the child their parents wanted.
  • An autistic child is receiving stressful, traumatic conversion therapy to make them “normal” and remove their autistic “symptoms”.
  • An autistic child is becoming seriously ill through being forced to drink bleach or overdose on vitamin C to purge them of “toxins”.
  • Someone is talking, in all seriousness, about “vaccine damage”, and about autism being an “adverse effect” of vaccines.
  • A parent or caregiver is contemplating murder.
  • Somebody, somewhere is telling an autistic woman that they have no business calling themselves autistic because they, and others like them, have caused the diagnosis to be “dumbed down”.
  • Female autistics, autistics of colour, and queer, trans and/or non-binary autistics are being told to “stop making it all about them” as everybody needs support.
  • Somewhere, a media outlet is mocking autistic people and enforcing dangerous stereotypes.
  • A harmful meme is being spread on social media, and autistics are being told to “lighten up” and “get over it” as it’s just a harmless joke.
  • A healthcare professional is delivering an autism diagnosis to the parents of a child, and warning them of all the things that child will never do and explaining all the ways in which they are broken.
  • An advertising campaign is doing exactly the same in a series of commercials, flyers, and posters.
  • An “autism warrior mom” is lamenting her plight and desperately wishing that her child wasn’t such a burden.
  • Another parent is battling educators, healthcare providers, insurers and local authorities to get the support their child so desperately needs, but that is so difficult to come by.
  • An autistic teenager is contemplating suicide because they can’t stand the bullying any longer.
  • An autistic adult is staring at another job application form, wondering whether to disclose or not, how they’ll manage an interview and wondering whether this time they might finally get lucky after so much rejection.
  • Another autistic adult is trying to fend off the overwhelm and overload of working in an environment that’s uncomfortable, painful and overly-demanding of their senses and cognitive function.
  • Yet another is wondering how on Earth they’re going to get the financial support they need to enable them to live.
  • An ill-advised person in a position of power and influence is bemoaning the “autism epidemic” and wondering how on Earth it can be stopped; how autism can be put to an end.

And so much more. All over the world. Every day.

The scourge of “Awareness” never stops.

And so the work to promote Autism Acceptance must never stop. There is so much work to do.

Meanwhile, autistic people are living, loving, laughing, thinking, creating, caring, acting, performing, helping, supporting, advising, campaigning, sharing, uplifting, amplifying, celebrating, commiserating, learning, working, teaching, making, saving, rescuing, mentoring, encouraging, inventing, designing, innovating, suffering, shouting, crying.

Speaking.

And all the other things that humans do.

We’re here. It’s time to accept us, and appreciate us as a part of the world we, and you, all live in together.

Thank fuck April’s nearly over.

But the struggle never stops.

***

As for me, I’m going to have a bit of time off. My emotions, and my hyper empathy, have been, well, hyper, this month. I’ve been up, I’ve been down. And I’m pleased I’ve managed to post an entire month’s worth of images, every day, to do my bit to promote Autism Acceptance and Appreciation. But it’s cost me, as has seeing all I’ve seen (and I haven’t seen the half of it, believe me).

So next month, I’m not going to be around much. I might post the odd thing; but I might not. I’ll see how I feel.

May will be a month of self-care. God knows I need it. And my family need me. My loving husband and my beautiful children will be my focus this coming month. Plus work, and a couple of long-overdue projects that really need my attention.

I’m going to have a rest from blogging, just for a short while.

Ta-ra for now, chums!


[Image description: Part of a lilac-painted living room with deep purple floor and white skirting boards. Mama Pineapple, a white femme-presenting person with red hair, wearing purple socks, blue leggings and a red, floral patterned tunic top, reclines on a brown leather sofa, one hand held over her forehead partially obscuring her face in a gesture of weariness. There are patterned cushions around her. Her other hand dangles down towards a white mug full of steaming coffee on the floor just in front of the sofa.A thought bubble above her reads “THANK F**K THAT’S OVER!”.

I’m very sweary, and would normally quite happily not star out the swear words, but I’m hoping doing in the featured image so might help the circulation of this a bit.]

#AutismAcceptance/#AutismAppreciation Doodles ‘n’ Scribbles, no. 14: Being an Autistic Parent (PART 2)

A comic strip of three panels, laid out in portrait orientation, and drawn digitally in black and white. PANEL 1: IMAGE: Silhouette of a mother and two children (the elder one long hired wearing a floaty dress; the younger one with short hair, t-shirt and tracksuit bottoms). All are barefoot, and jumping/dancing. They are surrounded by musical notes, stars and flowers. TEXT: “But there’s so much joy we share.” PANEL 2: IMAGE: Composition of a child’s drawing featuring two people and the crudely written words “I love you”, a child’s hand holding a heart-shaped object, another child’s hand holding a flower, and an iPad screen containing various emoji and the words “My Mum is the best!” TEXT: “I know they love me, from all the little ways they show me.” PANEL 3: IMAGE: Mama Pineapple, a white female-presenting person with mid-length hair, hugging two small children, whose faces are turned away from the viewer. TEXT: “And the love I have for them is the biggest, scariest, most beautiful feeling I’ve ever had.”

A continuation of yesterday’s little comic strip. One day I might expand this into a longer piece about autistic parenting, but I don’t have the spare time or executive function to commit to producing a regular web comic at the moment…


Text description:

A comic strip of three panels, laid out in portrait orientation, and drawn digitally in black and white.

PANEL 1:
IMAGE: Silhouette of a mother and two children (the elder one long hired wearing a floaty dress; the younger one with short hair, t-shirt and tracksuit bottoms). All are barefoot, and jumping/dancing. They are surrounded by musical notes, stars and flowers.
TEXT: “But there’s so much joy we share.”

PANEL 2:
IMAGE: Composition of a child’s drawing featuring two people and the crudely written words “I love you”, a child’s hand holding a heart-shaped object, another child’s hand holding a flower, and an iPad screen containing various emoji and the words “My Mum is the best!”
TEXT: “I know they love me, from all the little ways they show me.”

PANEL 3:
IMAGE: Mama Pineapple, a white female-presenting person with mid-length hair, hugging two small children, whose faces are turned away from the viewer. Small love hearts radiate outwards from the group.
TEXT: “And the love I have for them is the biggest, scariest, most beautiful feeling I’ve ever had.